West Cumbrian MP Jamie Reed has this week sponsored an event in Parliament on behalf of Action Cerebral Palsy, for the launch of their new report ‘Variations in Care: An analysis of cerebral palsy provision’.
Action Cerebral Palsy is a national consortium of specialist charities who work with children living with cerebral palsies and their families. The report provides the results and recommendations from Action Cerebral Palsy’s recent Freedom of Information Report on the status of provision for children with cerebralpalsy across the regions.
The report found that information on cerebral palsy provision is often unavailable or limited, and that there is a variable provision across England.
Action Cerebral Palsy also found that between 2010/11 and 2015/16, 41 children and young people were diagnosed with cerebral palsy in Copeland, and that Cumbria CCG does not have a care pathway for children with cerebral palsy or a service framework.
Copeland MP Jamie Reed said:
“I am pleased to have been able to sponsor this important report launch. I support the recommendations made by Action Cerebral Palsy which could significantly improve support for children living with Cerebral Palsy and their families.
“It is disappointing that there is currently a lack of information available on provision, and clearly unacceptable variations in support and care available to children and their families across England.
“Government must now read this important report and take steps to implement its recommendations in full, by establishing standardised recording and a cerebral palsy register, clear guidance on engaging experts, enhanced programmes of training, and improved access to information”.
Action Cerebral Palsy Chief Executive, Amanda Richardson, said:
“This report highlights the diversity of levels of care received by children with cerebral palsy and their families across England. While there are some areas, such as County Durham and Bristol, where care standards and access to services is extremely high, we are concerned that some children, particularly those in rural areas, may not be receiving the care they require.
“The report demonstrates the challenges of provision faced by many children with cerebral palsy and their families, and the need for minimum nationwide standards to ensure that all children with cerebral palsy can reach their potential.
“We are extremely grateful to Jamie Reed and his staff for the support they have given in the drafting of this report and in helping to organise our most recent Parliamentary event.
“We hope that the report will be a starting point in raising standards of care for children with cerebral palsy across England and that it will provide an opportunity to encourage the sharing of best practice so as to ensure that every child can access the services that they need.”